Tokyo Albinism ConferenceFeaturing 14 experts and persons with albinism from Africa and more
Albinism is a rare, non-contagious, genetically inherited condition that occurs worldwide. In North America and Europe, 1 in 17,000~20,000 people have the condition, while the prevalence in Sub-Saharan Africa is much higher; in Tanzania; for example, it is 1 in 1,400 people.
Myths and superstitions expose persons with albinism to varying degrees of discrimination, prejudice and stigmatization, ranging from teasing and bullying to being physically threatened and killed for their body parts. The problems people with the condition face are especially severe in Sub-Saharan Africa, and this will be the focus of the Tokyo Albinism Conference.
This one-day conference, organized by The Nippon Foundation in close collaboration with the United Nations Independent Expert on the enjoyment of human rights by persons with albinism, Ms. Ikponwosa Ero, is designed to raise awareness of the issue in Japan, generate discussion, and promote greater international collaboration to prevent the human rights abuses suffered by persons with albinism.
The program will feature an overview of the issues by Ms. Ero, followed by three panel discussions featuring representatives of organizations of persons with albinism from Sub-Saharan African countries and experts on education and legal issues. Representatives from the Japanese Albinism Network will also participate.
There will also be a performance, “Love is here to stay,” by jazz singer and the world’s first fashion model with albinism, Connie Chiu, during the conference.
In addition, a photo exhibition, “White Ebony,” by the world-reknowned, prize- winning photographer Patricia Willocq, will be open to the public throughout the week.
Please come and join our discussions to learn more about this important human rights issue in Africa.
Tokyo Albinism Conference
|Organized by||The Nippon Foundation|
|Supported by||United Nations Independent Expert on the enjoyment of human rights by persons with albinism, Africa Japan Forum, Center for Human Rights Education and Training|
【To attend this conference】
Please enter the link below and apply for the conference by 6 PM, November 8, or email Ms. Kyoko Itoh at email@example.com.
【Program】※English-Japanese simultaneous translation available
|09:00～Opening Session||Yohei Sasakawa, Chairman, The Nippon Foundation
Yasuo Yabuki, Rikkyo University, Japanese Albinism Network
Ikponwosa Ero, UN Independent Expert on the enjoyment of human rights by persons with albinism
|09:40～Session1||Realities: Our Experiences (Tanzania, Malawi, Mozambique)|
|12:20～||Musical Performance “Love is here to stay” by Connie Chiu, jazz singer with albinism|
|13:45～Session2||Government Engagement, Legal and Other Tools (Nigeria, South Africa, Kenya)|
|16:15～Session3||Promoting Involvement, Building Sustainability|
|18:00～||Reception and Photo Exhibition “White Ebony” by Patricia Willocq|
- Tokyo Albinism Conference program (PDF / 356KB)
- Tokyo Albinism Conference speakers and key participants (PDF / 783KB)
- Love is here to stay_Live performance by Connie Chiu (PDF / 704KB)
Kyoko Itoh, Special Project Coordination Team, The Nippon Foundation
- +81 (0)80-4131-9947